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The availability of drug-related data from governmental and other public sources has improved in many areas since 2000, and more is needed to fully understand this product. Although several agencies are involved in the development and maintenance of these data, legal statutes, strong business incentives, and the requirement to collect and release data for drug regulation to policymakers, insurers, and others makes the collection of data for legitimate public-health use in a timely fashion difficult. There are several public and private organizations that collect opioid-related data, including the CDC, the Adverse Drug Event Consortium (ADEC), and numerous private insurers, as well as pharmaceutical companies themselves, including IMS Health, IQVIA, Truven, and Lexicon.
The CDC has been heavily invested in the opioid epidemic for decades, and many of their data sources are still being used to analyze and address this issue. One of the most well-known data sets that CDC maintains is the National Survey on Drug Use and Health, which collects data on substance use on the U.S. population since 1971. In 2014, the CDC removed most of their prescription drug abuse data and the de-identification of respondents in their data set to provide privacy protections to the individuals who answer these surveys. When this occurred, it inadvertently enabled the opioid epidemic to better be monitored and addressed because of the elimination of this data source.
Trends in HIV testing and counseling have been collected since the 1970s by several federally sponsored surveys, including the National Household Survey on Drug Abuse (NHSDA), the National Survey of Drug Use and Health (NSDUH), and the National HIV Behavioral Surveillance System (NHBSS). These surveys have found that rates of HIV testing increase with age and increase with education level. These data have been used to estimate HIV incidence rates in the United States. Measures of HIV prevalence among people who inject drugs (PWID) have been available since the late 1990s. These data have been used to estimate HIV prevalence among PWID; the annual HIV sentinel surveillance (Sentinel) program started in 1993 and was used to assess trends in HIV infection among PWID ( Henderson et al., 2016 ). However, it only started collecting data on the proportion of infections acquired through sharing syringes in 2009, after the government removed restrictions on syringe purchases that prevented PWID from acquiring syringes from pharmacies. The question regarding HIV transmission risk behaviors among PWID has also been available since 2007, and has been included in NHBSS since 2009. 3d9ccd7d82
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